Thursday, October 20, 2005

Unconnected

Hey everyone, I am writing today because JJ and Sara have moved into an apartment. The doctors thought JJ should be closer to the hospitol than our mothers' house in Rosemount. Since they are in a new place they have no phone (except cell), no cable , and no internet. JJ should be able to write in about 3-4 days as he will be back in the hospitol for more chemotherapy. Now more than ever before JJ needs each and every person who reads this blog to continue to give him your love. It is this love that has kept the fight in him since he relapsed. I can not tell you how much what you have done for him has meant to me and my family. Thank you to everyone whom has continually given my brother words of encouragement, hope, and love. Most recently Thank you to Springsteen fans around the country for your words and thoughts. And from the bottom of my heart thank you to the special friend that set up JJs' meeting with Bruce I wish you could have seen how happy that made him. To unselfishly give your time for the happiness of another is love.
Love to all---Brother

Saturday, October 15, 2005


This Sara and I before Bruce's soundcheck. We were all alone with him during the soundcheck pretty awesome. He played Tunnel of Love for us, but did not play it during the show.
The Set list is:
Wreck On The Highway
Idiot's Delight
Into The Fire
Devils And Dust
Lonesome Day
Long Time Comin'
Back In Your Arms
For You
Johnny 99
All I'm Thinkin' About
Ain't Got You
One Step Up
Reno
Nothing Man
Thunder Road
The Rising
Darkness On The Edge Of Town
Jesus Was An Only Son
Two Hearts
The New Timer
Matamoros Banks
(encore)
I Wanna Marry You
The Ties That Bind
My Best Was Never Good Enough
The Promised Land
Dream Baby Dream

Thursday, October 13, 2005

sneak preview

So I get home from the hospital after another month of bad food and nice nurses, and the very next day I am being hugged by the Boss, yes that is right Bruce Springsteen, no joke, I will tell you the full story soon.
Unfortunately this means I have nothing left to accomplish in my life, so I could go any time now;)
Love,
JJ

Saturday, October 08, 2005


When I am low on hemoglobin the protein on red blood cells that carries oxygen, I become extremely tired and I often joke to My beautiful Sara and my wonderful mother that I feel like a Vampire. So here I am trying to get at the blood.

Here is a picture of me getting some blood. I want to tell you all once again, how important it is to donate blood. I have received likely over 70 transfusions of blood products, which include red blood cells, platlets, and other clotting factors. Without these donations I would not be alive, they have literally saved my life. If you go and donate any type of blood products you will be saving a life. If you want to go a step further you can register for the bone marrow donor registry.

Here is Former Heavyweight contender Scott LaDeux. He fought some of the greatest champions, including the man, Ali. He was full of life and it was a great visit. My mother and my beautiful girlfriend Sara were there with me to enjoy this man who is full of life. He says that George Foreman hit the hardest, second only Ken Norton.
A special thanks to the old fat guy that wakes up at 5 every morning for my viking medallions.

Thursday, October 06, 2005

Results of love

Hey everybody, well I managed to do it. Because of the love and support of my beautiful family, and the prayers and thoughts from you all, the anonymous gifts, the kind words, because of all these... i am now in Remission again. This means that they could not find any cancer cells in the bone marrow sample they took.
So, I will be going home tomorrow, though I am not sure where home will be because Sara and I are looking for an apartment.
Then three to four weeks later I will be coming back to the hospital and begin my transplant. It is weird to be excited for something that is going to make me incredibly sick, but it is the only treatment available that could 'cure' me.
Relish in this good news,
Thank you for your love,
JJ

Our Journey now Begins...this was the easy part, please stick with me, your love gives me energy.

Wednesday, October 05, 2005

Biopsy...again

Hey,
Yesterday I had another biopsy. Because of all of the narcotics I am on and ontop of that the pre-drugs used for the biopsy itself, I slept from 12 to nine at night!! And two hours later I went to bed...That is a lot of sleeping.

Early results look promising. The aspirate (liquid part) shows no leukemic blasts. This is very great, but it is not the whole story, that is written by the bone core.

I will let you know the results,
JJ